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Cardiomyopathy Support group
The Irish Cardiomyopathy Support Group was set up in 1999 in association with the Irish Heart Foundation. The purpose of the support group is to create an awareness of the condition and to support people affected by it.
The Irish support group consists of patients and their families. However, in recent times we are glad to include in our membership medical personnel who have an interest in the condition because of their contact with patients in clinics, hospitals or other medical settings. In all we have about 300 members from all over Ireland.
One message we are constantly promoting is that all first degree relatives of affected people should be screened for the condition because of the genetic nature of cardiomyopathy. Like all support groups we give and receive support from one another and we welcome new members.
What is cardiomyopathy?
Cardiomyopathy is a medical term to explain that there is a heart (cardio) muscle (myo) disorder or problem (pathy)
There are four types of cardiomyopathy:
•Dilated Cardiomyopathy (DCM)
•Hypertrophic Cardiomyopathy (HCM)
•Restrictive Cardiomyopathy (RCM)
•Arrythmogenic Right Ventricular Cardiomyopathy (ARVC)
More detailed information about Cardiomyopathy
Read the July 2008 Newsletter
Read the July 2007 Newsletter
Read the June 2006 Newsletter
Join our mailing list
Please note that more detailed booklets on these conditions can also be downloaded from the UK Cardiomyopathy Website www.cardiomyopathy.org
Videos and CDs on cardiomyopathy can be purchased from the
UK Cardiomyopathy Association,
Unit 10
Chiltern Court
Asheridge Road
Chesham
Bucks HP5 2PX
England
Phone: 0044 1494791224
Email: info@cardiomyopathy.org
Web address: www.cardiomyopathy.org
UK Cardiomyopathy Association
In addition to joining the Irish Cardiomyopathy Support Group we encourage our members to join the UK Association who regularly issue a newsletter with a variety of articles of interest to patients and their families. Membership of the UK Association costs in the region of £15Stg. For more information on the UK Cardiomyopathy Association and how to order booklets, videos or CDs on cardiomyopathy click here www.cardiomyopathy.org Alternately you can write to them at the address given above.
Email Support for younger people
The UK cardiomyopathy association now has a panel of young people with Cardiomyopathy willing to offer support by email. You can contact 17 year old Anne-Marie at anne-marie@cardiomyopathy.org


